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Wie zijn wij?
De Kashin-Beck Disease Foundation (KBDF) is een vanuit België opererende non-profit organisatie. Zij werd november 2002 opgericht en is geregistreerd in België (onder nummer 479.122.491).De uiteenlopende projecten zijn gericht op het wetenschappelijk onderzoek en het vinden van de oorzaken van de ziekte van Kashin-Beck met daaruit volgend het implementeren van een effectief en duurzaam preventieprogramma.
De medewerkers van de Kashin-Beck Disease Foundation zijn zowel van internationale en als Tibetaanse afkomst. Hun ervaring situeert zich vooal op het medische, agronomisch en chemisch vlak.
De Kashin-Beck Disease Foundation is in haar operaties, onderzoeksactiviteiten, financieel management, fondsenwerving en personeelsbeleid volledig onafhankelijk van politieke en bestuurlijke invloeden.
Voor zover bij ons bekend zijn wij de enige niet-gouvermentele organisatie waarvan het onderzoek en de klinische activiteiten specifiek gericht zijn op de zorg voor Tibetanen die aan de ziekte van Kashin-Beck lijden.Ook werken wij samen met Kashin-Beck Disease onderzoekers op het Chinese vasteland, met name in de provincies Harbin en Heilonjiang, Xi'an en Sha'anxi, Sichuan, Gansu en de stad Peking. |
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Historische context
De internationale humanitaire organisatie Artsen Zonder Grenzen (AZG) begon in 1992 een programma om de ziekte van Kashin-Beck te bestrijden in de Autonome Regio van Tibet, Deze ziekte wordt ook lokaal de “ ziekte van de grote beenderen “ genoemd.
Gedurende een aantal jaren werd er physiotherapie gegeven met als doel de pijn te verlichten en de fisieke handicap enigszins terug te dringen.
In 1997 besloot AZG om het project uit te breiden en werd er beslist om onderzoek te doen naar de risicofactoren en werd er ook een preventie strategie opgestart in 22 dorpen. In 70 andere dorpen werden doelgerichte preventieve activiteiten ondernome en in 50 lokale gemeenschappen werden er aangepaste curatieve technieken aangeleerd.
AZG, dat zich historisch meer toespitst op urgentie interventies, besloot om zich terug te trekken uit Tibet omdat het KBD programma ge-evolueerd was naar een interventie op lange termijn en daardoor geen deel meer uitmaakte van de prioriteiten van AZG. Desalniettemin werd er,om de continuiteit van het project te verzekeren, een nieuwe organisatie gecreerd namelijk de Kashin-Beck Disease Foundation. Deze organistie werd in het begin financieel gesteunt door AZG teneide voldoende middelen bij elkaar te krijgen om een zefstandig bestaan te leiden.
De KBD Foundation verstrekt vooral medische hulp aan de mensen die lijden aan deze ziekte enerzijds en anderzijds tracht ze om nieuwe gevallen te voorkomen door het toedienen van nutritionele suplementen en een betere stockage van de graanoogst. Daarnaast worden er voor de Tibetaanse medische dorpsdokters regelmatige trainingen in preventieve en curatieve technieken georganiseerd en wordt ook de studie naar de oorzaken van de ziekte voortgezet.
De 4 oprichters van de KBD foundation zijn wetenschappers en dokters die reeds vroeger deelnamen aan het project. De 6 leden van de Raad van Beheer zijn eveneens collega’s die betrokken waren in epidemiologische studies rond KBD en de behandeling van de ziekte. |
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Kashin-Beck Disease Foundation : Board of Directors |
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Maurice HINSENKAMP, MD, PhD
Board President and Co-founder of the KBD Foundation
Maurice Hinsenkamp is Professor and Chairman of the Faculty Board of Orthopedic Surgery at Brussels University (ULB). He is Head of Clinics of the Department of Orthopedic Surgery and Traumatology, University Hospital « Erasmus », Brussels, Belgium. His clinical subspecialities : hip surgery, external fixation, bone reconstruction. He is also Director of the Orthopedic Research Laboratory and of the Bone and Tissue Bank, Erasmus Hospital, ULB.
His main research fields are related to bone biomechanics and physical factors interacting with bone growth and repair.
Secretary General of the International Society of Orthopedic Surgery and Traumatology (SICOT) since 2002.
Involved in the multidisciplinary study on Kashin-Beck Disease since 1993, he participated to two missions with Doctors Without Borders in Tibet.
Guest Editor of an issue of International Orthopaedics (V. 25 (3), 2001) dedicated to the Kashin Beck Disease and author or co-author of 10 publications on KBD.
Email: mhinsenk@ulb.ac.be Phone: + 32 2 555 36 40. |
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Koen VANDEKERCKHOVE
Board Treasurer, co-founder
Koen Vandekerckhove was born in Zwevezele, Belgium, 1967. He studied business administration (applied economics) at the University of Antwerp (UFSIA), where he obtained his master’s degree in 1989. He got a postgraduate degree in development co-operation at the University of Ghent in 1991. He was a lecturer in accounting at the university of Dalat, Vietnam and Finance Director of two foreign-owned companies in the same city.
After his return to Belgium in 1999, he initially worked as a consultant for Andersen after which he took various positions in finance and management for social-profit organisations working on the integration of ethnic-cultural minorities.
As a co-founder of the KBD Foundation in 2002 he volunteered to become the treasurer, a position which he is still taking up today.
Email: koenvandekerckhove@belgacom.net
Phone: +32 9 223 66 67 |
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François MALAISSE, PhD
Board Secretary
Dr. Malaisse, born in Antwerpen (Belgium) in 1934, is Ingenieur (Forestry & Water) of Gembloux Agricultural University (1956), has a B.Sc. (Botany) from Brussels Free University (U.L.B., 1960) and a Ph. D. in Sciences from Lubumbashi University (1968). He was Head of the Ecology Unit at this last University(1970-86) and at Gembloux University (1987-2000). He devoted much research on ethnobotany and ethno-ecology, starting from local peasant knowledge to management of their environment in order to increase their local welfare. Such approach has been developed in Tropical Africa (Bemba, Nalu, pygmee), South America and Tibet (Ü population, KBD). He has published some eleven books and more than 300 papers. Knowledge of wild edible plants, their nutritional aspect, their domestication are main items surveyed. He is past-Director of the Science and Medicine Class of the Royal Academy Over-Sea Sciences as well as the Botanical Section of the National Council for Science Research of Belgium (F.N.R.S.).
E-mail: malaisse.f@skynet.be Phone: +32 81 601813 |
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Françoise MATHIEU, PhD
Co-founder of the KBD Foundation
Françoise Mathieu, born in Belgium in 1960, is Batchelor in Physical Therapy (1982) and holds a PhD in Physical Therapy and Rehabilitation (2001) from Brussels Free University (U.L.B.). The subject of her thesis was “Kashin-Beck Disease (KBD): Clinical Features, X-rays Aspects and Clinical Trial of a Physical Therapy Treatment in Central Tibet.”. She studied also Tropical Medicine (1986), Tropical Medicine Institute Prince Leopold, Antwerp, Belgium Methodology and Practice in Epidemiology (2003) and Medical Statistics (2005), University of Bordeaux - France.
She joined Médecins Sans Frontières/Doctors Without Borders (MSF) in 1986 and worked in several countries and contexts until 2002. The last 10 years (1992 – 2002), Dr. Mathieu managed the KBD projects for MSF.
In 2002, together with 3 colleagues, she created “Kashin-Beck Disease Foundation”.
At present, she is directing the different projects that the Foundation is implementing in Tibet Autonomous Region (P.R. China)
Email: francoise.mathieu@kbdfoundation.org Phone + fax: + 32 84 468347 |
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Camille CHASSEUR, PhD
Co-founder of the KBD Foundation
Camille Chasseur obtained a degree in Biological Sciences, with a specialization in Botany and Ecology, from Brussels Free University (ULB). He also holds a PhD in Mycology from Mons University (Belgium).
Dr. Chasseur is presently the Head of the Microbiological Indoor Pollution Unit in the Section of Mycology at the Scientific Institute of Public Health (I.P.H.) in Brussels (Belgium).
In 1995, he has been contacted by MSF Belgium to take part in a study on Kashin Beck Disease in Tibetan Autonomous Region (TAR). Several missions on site were carried out to verify the fungal hypothesis of the disease. In 1998, he contributed to the set up of a mycology laboratory in Lhasa. He is also involved in the different actions linked with the grains decontamination.
In 2002, he co-founded and became a member of KBD Foundation.
E-mail: camillechasseur@yahoo.fr
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Carl SUETENS, MD
Carl Suetens, born in Duffel (Belgium) in 1963, is a medical epidemiologist (MD, Catholic University of Leuven 1988;Tropical Medecine, Institute of Tropical Medecine Antwerp 1989; Epidemiological and statistical methods, Public Health School ULB 1992) and was the head of the Healthcare Associated Infections and Antimicrobial Resistance Programme at the Epidemiology Unit of the Scientific Institute of Public Health (I.P.H.) in Brussels. He is currently working at the Surveillance Unit of the European Centre for Disease Prevention and Control (ECDC) in Stockholm.
As a former member of the medical department of Médecins Sans Frontières (MSF), he has been working in the field of Kashin-Beck Disease since 1994, mainly on study design and data analysis in different subfields of KBD. His main area of expertise is the quantification of the balance between causal risk factors (mycotoxins on storage grains and humic acids in drinking water) and protective risk factors (food diversity, selenium and iodine deficiency) in the etiology of KBD through multivariate analysis.
Email: carl.suetens@telenet.be
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